| Author(s) |
Marilyn K. Kertoy |
| Volume | 28 |
| Number | 3 |
| Year | 2004 |
| Page(s) | 131-141 |
| Language | English |
| Category | |
| Keywords |
Evidence-Based Practice Clinical Process Evaluating Research |
| Abstract |
Abstract Professionals are frequently unaware of the complexity of issues faced by families of children who are technology dependent. Caring for children who are technology dependent at home has become the preferred service choice of families and health care providers. The benefits of having these children at home come at considerable social and emotional cost to families who assume the bulk of their care. In some instances, this care occurs without adequate community support and funding. The service delivery system has been slow to transfer such supports for children from hospital to home. This paper discusses the unique situation faced by families with children who are technology dependent and provides suggestions for how professionals and policy makers may improve the social and emotional supports for families. Abrégé Il arrive souvent que les spécialistes ne soient pas sensibilisés aux problèmes auxquels les familles d’enfants dépendants de la technologie doivent faire face. Le soin à la maison des enfants dépendants de la technologie est devenu, en matière de services, la méthode privilégiée par les familles et les fournisseurs de soins de santé. Les avantages des soins à domicile imposent un coût social et affectif considérable aux familles qui prennent en charge l’essentiel des soins. Dans certains cas, ces soins sont offerts sans un appui et un financement adéquat de la collectivité. Le système de prestation des soins tarde à transférer ces appuis aux enfants, de l’hôpital à la maison. Le présent mémoire se penche sur la situation unique à laquelle font face les familles d’enfants qui dépendent de la technologie et offre des suggestions sur la façon dont les spécialistes et les décideurs peuvent améliorer l’appui social et affectif aux familles. |
| Record ID | 889 |
| Link | https://cjslpa.ca/files/2004_JSLPA_Vol_28/No_03_107-150/Kertoy_JSLPA_2004.pdf |
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